Patient and Public Partner Financial Compensation Policy and Protocol

SPOR Evidence Alliance (2025).

Patient Partners Working group publication (via OSSU) for the patient perspective on aspects of POR

Johannesen, J. (2018). Patient views on “ladders of engagement”. OSSU.

The Patient-Oriented Research trends and supports in Ontario research hospitals and research institutes

Ontario SUPPORT Unit. (2025). An environmental scan of patient engagement infrastructure in Ontario research institutions. OSSU.

Preparing for Patient-Oriented Research, an extensive resource of training is available (from OSSU)

Ontario SPOR SUPPORT Unit [OSSU]. (2024) Capacity building compendium (4th ed.).

Evidence-based patient partner engagement guidance (from BC SPOR SUPPORT Unit)

Kent, A. (2019). Evidence-informed practices and strategies for patient-oriented research (POR): A ‘menu’ for research teams. BC SUPPORT Unit.

Steps for Patient-Oriented Research (from Quebec SPOR SUPPORT Unit)

Poitras, M.-E., Godbout, I., T Vaillancourt, V., Débarges, B., Poirier, A., Prévost, K. & Spence, C. (2020). Step-by-step strategies for an integrated patient-oriented research: Lessons learned from a multicentered study. Science of Nursing and Health Practices / Science infirmière et pratiques en santé, 3(2), 1–9.

Patient-Oriented Research at all levels of research (from BC SPOR SUPPORT Unit)

BC SUPPORT Unit [BCSU]. (2019). A journey through public and patient engagement in health research: A road map [Interactive Tool].

Indigenous research partnerships (OSSU publication through Longwoods - one of many)

Mulder, C., Debassige, D., Gustafson, M., Slater, M., & Walker, E. E. and J. D. (2022). Research, sovereignty and action: Lessons from a First Nations-led study on aging in Ontario. Healthcare Quarterly, 24(Special Issue).

Importance of evaluation throughout (OSSU publication through CMAJ - one of many)

Aubin, D., Herbert, M., & Eurich, D. (2019). The importance of measuring the impact of patient-oriented research. CMAJ, 191(31). E860-E864.

Diverse Patient Family Advisory Committee (PFAC) recruitment and engagement

Leia, M. P., See, K., & Cuthbert, C. (2025). Barriers and Facilitators to the Recruitment and Engagement of Diverse Populations Into Patient and Family Advisory Councils: A Scoping Review. Journal of Patient Experience, 12, 23743735251376068.

First of four papers discussing the SPOR Evidence Alliance

Tricco, A. C., Zarin, W., Clement, F., Abou-Setta, A. M., Curran, J. A., LeBlanc, A., Li, L. C., Godfrey, C., Moffitt, P., Moher, D., Colquhoun, H., Graham, I. D., Florez, I. D., Wilhelm, L., Isaranuwatchaia, W., Mann, J., Hamilton, M., Srinivasan, V., Bornstein, S., & Straus, S. E. (2022). Introducing the Strategy for Patient Oriented Research (SPOR) Evidence Alliance: A partnership between researchers, patients and health system decision-makers to support rapid-learning and responsive health systems in Canada and beyond. FACETS, 7, 639–653.

Patient Oriented Research