How to do POR

Patient and Public Partner Financial Compensation Policy and Protocol

SPOR Evidence Alliance (2025).

How to do POR

The Patient-Oriented Research trends and supports in Ontario research hospitals and research institutes

Ontario SUPPORT Unit. (2025). An environmental scan of patient engagement infrastructure in Ontario research institutions. OSSU.

How to do POR

Preparing for Patient-Oriented Research, an extensive resource of training is available (from OSSU)

Ontario SPOR SUPPORT Unit [OSSU]. (2024) Capacity building compendium (4th ed.).

How to do POR

Evidence-based patient partner engagement guidance (from BC SPOR SUPPORT Unit)

Kent, A. (2019). Evidence-informed practices and strategies for patient-oriented research (POR): A ‘menu’ for research teams. BC SUPPORT Unit.

How to do POR

Patient-Oriented Research at all levels of research (from BC SPOR SUPPORT Unit)

BC SUPPORT Unit [BCSU]. (2019). A journey through public and patient engagement in health research: A road map [Interactive Tool].

How to do POR

Steps for Patient-Oriented Research (from Quebec SPOR SUPPORT Unit)

Poitras, M.-E., Godbout, I., T Vaillancourt, V., Débarges, B., Poirier, A., Prévost, K. & Spence, C. (2020). Step-by-step strategies for an integrated patient-oriented research: Lessons learned from a multicentered study. Science of Nursing and Health Practices / Science infirmière et pratiques en santé, 3(2), 1–9.

How to do POR

Diverse Patient Family Advisory Committee (PFAC) recruitment and engagement

Leia, M. P., See, K., & Cuthbert, C. (2025). Barriers and Facilitators to the Recruitment and Engagement of Diverse Populations Into Patient and Family Advisory Councils: A Scoping Review. Journal of Patient Experience, 12, 23743735251376068.

Indigenous POR

Indigenous research partnerships (OSSU publication through Longwoods - one of many)

Mulder, C., Debassige, D., Gustafson, M., Slater, M., & Walker, E. E. and J. D. (2022). Research, sovereignty and action: Lessons from a First Nations-led study on aging in Ontario. Healthcare Quarterly, 24(Special Issue).

Evaluation of POR

Importance of evaluation throughout (OSSU publication through CMAJ - one of many)

Aubin, D., Herbert, M., & Eurich, D. (2019). The importance of measuring the impact of patient-oriented research. CMAJ, 191(31). E860-E864.

Patient Perspectives

Patient Partners Working group publication (via OSSU) for the patient perspective on aspects of POR

Johannesen, J. (2018). Patient views on “ladders of engagement”. OSSU.

Patient Oriented Research

How to do POR

Patient and Public Partner Financial Compensation Policy and Protocol

The Patient-Oriented Research trends and supports in Ontario research hospitals and research institutes

Preparing for Patient-Oriented Research, an extensive resource of training is available (from OSSU)

Evidence-based patient partner engagement guidance (from BC SPOR SUPPORT Unit)

Patient-Oriented Research at all levels of research (from BC SPOR SUPPORT Unit)

Steps for Patient-Oriented Research (from Quebec SPOR SUPPORT Unit)

Diverse Patient Family Advisory Committee (PFAC) recruitment and engagement

Indigenous POR

Indigenous research partnerships (OSSU publication through Longwoods - one of many)

Evaluation of POR

Importance of evaluation throughout (OSSU publication through CMAJ - one of many)

Patient Perspectives

Patient Partners Working group publication (via OSSU) for the patient perspective on aspects of POR

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